Over the past couple of days I have been posting information and videos about other rare diseases. As I posted before World Rare Disease Day is February 28th 2011. I will continue to post blogs about other rare diseases to educate people on how these diseases effect our children and in some cases adults.
Today's video is about the Fight for Gwendolyn. Gwendolyn has Spinal Muscular Atropy (SMA). SMA is the leading genetic killer of children under two. SMA alters the use of all muscles, impacting the ability to sit, walk, eat, breathe, and even swallow. The mind is never affected, making the children fully aware of their failing body. Life expectancy is between two and three years of age.
No comments:
Post a Comment