Niemann Pick Awareness Month

Okay everyone today is the first day of Niemann Pick Awareness Month and I need your help!!! I need 11 people to donate $11 each! This is a challenge the foundation came up with. It is so simple and is a great way to raise alot of money!!

We received the news in July 2008 that Tylor has Niemann Pick Type C and every since we have been very active in the Niemann Pick community to help raise money for research. We have had great support from our family, friends and community and we Thank You for that from the bottom of our hearts.

I know there are always fundraisers going on and thounsands of groups to support but $11 isn't much and it will make a huge impact!! Please if you are interested in helping contact me at Rjenw97@aol.com or send your donation to 1825 Garfield Ave, Dubuque, IA 52001. Please make the checks out to NNPDF.

Thank you again for all the support and stay tunes this month I will be posting about other children affected by this horrible disease.

Coins for Comments

Today marks the first day of National Niemann Pick Disease Awareness Month and Jill, Tylor's stepmom, has come up with a great way to donate some money to the foundation, Coins for Comments. They have a blog for him also and if you make comments through out the month of October money will be donated to NNPDF. Please check it out and make some comments....Tylor loves to hear what everyone has to say. Plus you will get to see what he is up to at his Dad's house and meet his sisters and brothers!!

Time with Ty

Thank you for your support and love!

October Niemann Pick Awarness Challenge

Walk for a Cure in Memory of Riley Corbitt 2010

This year for Niemann Pick Awareness Month we are challenging people to find 11 people to donate $11 each. This is such a simple way to raise a lot of money. I know we are a month away but I wanted to put a bug in every ones ear so you could start making your list of the 11 people you are going to ask. Also remember to challenge others to find 11 people to donate $11 each!!

Stay tuned for more details as they come along from the National Niemann Pick Disease Foundation.

Remember Riley

In August 2009 Tylor, Sy and I went to Seattle for the NNPDF family conference. While there we met some amazing families struggling with NPD or struggling with the loss of their child from NPD. Unfortunately, we never got to meet Riley Corbitt but we did have the honor of meeting her family and friends. Tylor hit it off with them right away and really bonded with them. So in support of National Niemann Pick Awareness Month and Riley's family we are heading down to Alabama to participate in the Walk-a-Thon!! I know driving 12 hours to walk crazy right?? So I decided to make a vacation out of it. 

Niemann-Pick Disease Type C Walk-a-Thon

Saturday, October 16, 2010

Woodville, Alabama

Riley May Corbitt (NPC)

7/27/02 -10/29/08

The Woodville (Alabama) High School Student Government Association will sponsor a walk-a-thon in memory of Riley Corbitt (NPC) on Saturday, October 16. The event will begin at 10:00 a.m., at the Woodville High School.

Walk-a-thon participants are asked to try for six sponsors each, representing the six years Riley was with us. Click here for a sponsor sheet.

In Loving Memeory of Stacey Vorpahl

One Child’s Story Through Niemann-Pick Disease Type C

Stacey Lynne Vorpahl (NPC)

January 3, 1985 – October 9, 2004

In loving memory of Stacey and all the other precious children lost to NPD, and in honor of those still struggling, please join with us in our Quest for a Cure. Follow the link to view Stacey's story, as told by her parents in text and photos.

10 – 10 – 10 Challenge

Please Help Raise Awareness for Niemann-Pick DiseaseMeet the NNPDF's 10-10-10 Challenge and take at least one simple action on October 10,2010, to spread the word about this devastating disease.

City of Dubuque Proclaims October Niemann Pick Awareness Month

We just received the Proclamation from the City of Dubuque proclaiming October National Niemann Pick Disease Awareness month. Unfortunately we didn't make it to the City Council meeting to accept the proclamation in person.

Thank you Mayor Roy Buel, Mayor Pro-Tem Karla Braig and the entire City Council for proclaiming October as National Niemann Pick Awareness Month.

10-10-10 Challenge

October is National Niemann Pick Disease Awareness Month and with Sunday being 10-10-10 we are challenging everyone to spread the word to at least 10 people. Send Ty's website link to your friends and family and tell them to share it with 10 people and so on.

Another great to help is to visit the websites below. These are 10 other families affected by Niemann Pick Disease and are fighting everyday just like us to find a cure. Together we can make a difference...will you help make a difference??

Addi and Cassi Hempel

The Hadley Family

Hope for Aaditya

Brisan and Parker Stults

Gabrielle LaVerde

Dillion Papier

Jessica Leoni

Georgina's Gang

Our Kaiden 1

Breann Chavez