Book about the Life of Chuck Beckman (NPC)
to Benefit NNPDF's Programs of Research
Released just in time for October Niemann-Pick Disease Awareness Month, What Matters Most: Living with the Young Adult Onset of Niemann-Pick Disease Type C (NPC) is a new book by Rozetta Beckman about her family's journey through Niemann-Pick Disease.
NPC took the life of Rozetta's son, Chuck, at the age of 36. He was diagnosed with NPC as a young adult, after symptoms began to surface when he was about 18 years old.
Proceeds from the book will be donated to the NNPDF for research into NPC.
To see a preview of the book and to place an order, visit:
Hardcover edition Paperback (color) Paperback (bl & wh) Downloadable ebook
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