3 Down and only 1 to go...

It's so hard to believe that camp is coming to a close.  He will go for his last weekend on Friday!  We have met so many amazing people again this year that has made Ty's camp experience unforgettable.  They love him so much out there.  It is hard to leave.  I actually was crying as I drove away on Sunday.  It is so awesome to see him having so much fun and smiling the whole way home.  This place is such a great organization for people with special needs.  It has been a blessing to our family and we have made life long relationships with so many people. 

Here are some pictures that were taken over the few weeks he was there.  There is no denying he had a blast!!

Ty and Cassi

Ty and Kristina

Got a little Cowboy in ya!!

Saddle up partner

A little water time with Cassi

Ty loves blowing bubbles

Dancing with the girls image that!  You hotdog Ty

Check out his cool shades

Look closely at Kristina's face...it says I Love Tylor

Surrounded by girls again

Art and craft time

His bear has to go with him too

Look at that smile

Push American guys. If you haven't heard about them. Check them out...they are doing some great work for special needs camps across America.

Let's Ride...

3rd ANNUAL RYDE 4 TYLOR

AUGUST 11th 2012

SIGN UP AT KNICKER'S 10:30-NOON

$10 PER PERSON

KICKSTANDS UP AT NOON SHARP!

1st Stop - Buenie, IA "Hank's"

2nd Stop - Guttenberg, IA "Damn Bar"

3rd Stop - Petersberg, IA "The Detour"

4th Stop - Farley, IA "Dirty Ernie's"

Last Stop - Dubuque, IA "Knicker's"

There will be 50/50 Drawings through out the day.

Koozies and bracelets for sale

Dinner will be from 6:00 to 7:30 at Knicker's

$3 donation 

Please come out and support the fight against Niemann Pick Type C!!  Cars and trucks also welcome!! Please pass the word and we look forward to a great ride and raising awareness about this horrible disease!!

What has Ty been up to??

Hello Everyone!

Tylor has been a very busy little (or should I say big??) boy. A few weeks ago he had a speech evaluation to find out if there is a better way for him to communicate with us. Because the disease is not progressing like we thought it would he is still interacting very well but verbal communication is hard for him. The speech therapist suggested we look into DynaVox. This device looks kind of like the iPad, it is all touch screen but it talks for him. He will be able to take pictures with it and add descriptions. We got to try it out with a DynaVox sales rep last week and I think this will work great for Ty. Tylor should receive his in about three weeks. We have four weeks to try it and make sure that it is the right fit for Ty and if it is it's his!!! I am so excited about this...

Last weekend we took a road trip to Milwaukee so watch the Cubs/Brewers game! Of course the Cubs lost but being the die hard Cubs fans that we are you get use to it! Even though they got beat 6 to 0 Tylor had a great time. He was girl watching most of the game. On our way home we visited Tylor's Great Grandma Pearl, Aunt Janet, and Uncle Terry in Rosco, Illinois. He slept most of the time...he was tried after chasing all the girls at the game.

This week Tylor received a bike from therapy, they are letting us keep it for the summer. He lights up every time he is on it. He rides for about 45 minutes everyday....he is pretty tired when we are done. He thinks it's funny to go fast so I have to run along side of him, what a little stinker!